Clinical Project Coordinator

Broad Institute – Cambridge, MA

Our team is focused on applying genomic technologies to diagnose families affected by rare genetic diseases. To assist with these efforts, we are seeking an organized and motivated Clinical Project Coordinator (CPC) to work within the Broad Center for Mendelian Genomics (CMG) ( https://cmg.broadinstitute.org/ ) on the Rare Genomes Project (RGP) ( http://www.raregenomes.org ). The RGP is our direct-to-patient genome sequencing initiative aimed at identifying the underlying genetic basis for rare and undiagnosed conditions affecting families from around the country. Our mission is to partner directly with patients, families, advocates, and clinicians to accelerate the rate of rare disease diagnosis and increase patients access to genomic research. We are seeking a motivated CPC who can help ensure that these efforts run smoothly and effectively. The CPC will have an important role in the RGP in coordination of patient participation in the project. Additionally, the CPC will work with a diverse team of software engineers, computational biologists, clinicians, analysts, and investigators, among others on our team. The ideal candidate for this position will be detail-oriented, comfortable talking with patients and families, enthusiastic about clinical research, and have a desire to continuously improve processes.

Responsibilities:

  • Serve as the primary telephone and email point of contact for applicants and participants in the project.

  • Communicate with families at various time points to facilitate enrollment and participation, including notification of acceptance into the project, the scheduling of consent appointments, and responding to participant questions at all stages of their participation.

  • Track applications, samples, and data collected as part of the project and compile project statistics on a routine basis.

  • Obtain, compile, and enter demographic, clinical, and other necessary study data into study databases.

  • Assist with obtaining medical records and samples from participants.

  • Participate in meetings of the MacArthur/Rehm Rare Disease Group, which includes the Rare Genomes Project.

  • Help improve processes and develop automation solutions as the project scales.

  • Contribute to other RGP-related efforts, which may include developing content updates for the website and patient recruitment materials, developing and maintaining an RGP Facebook page and/or other social media presence, assisting with the development of a patient portal, or IRB-related tasks.

Qualifications:

  • Bachelor s Degree required.

  • Spanish-speaking a plus.

  • Must be very detail-oriented and extremely self-motivated, with the ability to effectively manage time and prioritize workload.

  • Excellent organization, communication, and time management skills required.

  • Strong interpersonal skills; ability to effectively interact with all levels of staff and external contacts.

  • Ability to work as part of a multidisciplinary team, in a fast-paced and challenging work environment and respond to shifting priorities.

  • Must possess a high level of initiative.

  • Experience working directly with patient populations and/or data management preferred.

The Broad Institute will not offer visa sponsorship for this opportunity.

EOE / Minorities / Females / Protected Veterans / Disabilities

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